Caregiver perspectives on a diagnosis of 3q29 deletion
Megan R. Glassford, Ryan H. Purcell, Sarah Pass, Melissa M. Murphy, The Emory 3q29 Project,*, Gary Jonathan Bassell, Jennifer Gladys Mulle
This study explores caregiver experiences and concerns following a diagnosis of 3q29 deletion syndrome, highlighting gaps in communication about future psychosis risk.
Journal of Developmental & Behavioral Pediatrics · Jul 27, 2021Peer-reviewedGenetic & Genomic Medicine